Seizures....

We were due to go home today... Not much time to type... but for the update... Parker is back in the ICU with Seizures and the doctors' are trying to figure out what is going on with him...
A loading dose of phenylbarbitol has been started and they have kept him on ativan to sedate him. He has continued to have cluster seizures throughtout the day..

Our journey has only just begun....

Oh don't mind his little spots on his face... They are from the EEG performed... They have left little burns on his face and the he has an IV in his little head... but he seems content with it today...

MRI today and a swallow study for dessert.. hope to go home sooon...

Well an MRI was completed today to rule out brain damage... According to the pulmonologist... Park's little brain is perfect... He shoud. be ok. He is not seeing an residual in his breathing except that he does not move air very well. He feels this is a result of his RSV infection in December. Because sedation was used for the MRI, Parker is being kept one more night in the hospital. He has been projectile vomitting ever since his sedation so a swallow study was ordered... He is refluxing clear into his thoracic cavity... so now we have to thicken his bottles... As long as our little man holds dinner down tonight and his bottle tomorrow... We will be heading home before lunch tomorrow... Please continue with prayers....

Parker is Stable....

Parker is doing much better today... He is off oxygen and we are being transferred from the PICU to the regular Peds unit... He is interacting like his normal self... smiling and cooing... I feel like my baby is back. Dr. Chowdary said that he will be going home on an Apnea monitor so that we can avoid any apnea or low heart rate events in the future... I will keep you all updated on what is happening... We pray to go home tomorrow...

911 Emergency....

Please Pray... at 12:38 p.m. this afternoon, I found Parker blue and lifeless in bed. He was not breathing and I could not find his heartrate... I began crying... I didn't know what to do. I started CPR and called my mom... She told me to call 911... TRAA was here in a matter of minutes and we were rushed to the hospital. He is now stable and on a nasal canula. A Ct Scan showed not abnormalities. An MRI will be performed when he is stable to rule out brain damage... I will keep you updated...

Christmas in January...

Now that we are home, tucked in and enjoying our own space... Joe and I decided that the babies still needed to experience Christmas at home. We were hoping to start a family tradition this year and do something that we would do each year... We decided that we will start a tradition next year... and it will NOT be a repeat hospital stay.. Not more holidays in the hospital. It would only be our luck that we would end up in the hospital on Ground Hog's day or Valentine's day this year....

We had dinner as a family and then started to open gifts.. Only to find that the batteries died on the camera... If only something could go right in the Mayernik household. We pushed the pause button and Joe headed to Walgreens for batteries.. We did not want to miss the little bit of Christmas we had left with the babies...

Well after Joe returned from the drugstore.. both babies fell asleep.. We opened our gifts and also theirs'. Not like they would have opened them anyways... January 3rd definitely did not feel like Christmas.. To be completely honest, it felt awkward to open gifts...

What is important is that Christmas is about the birth of Christ our savior... We read a biblical version of the Christmas story with the babies before we put them to bed for the night. Every year we will make sure to remind each of our beautiful children what the true meaning of Christmas really is...

Are we really going home???

I can't believe it... After 9 days and a lot of coughing and low oxygen levels... Audrey is finally going home... Audi's O2 level stayed about 95% all night last night and we finally are heading home... We are so excited and can't wait to get out of the hospital... We will update you all when we get tucked in and home... Thanks for all your prayers and support...

Parker is Dischraged... Waiting on Audi...

Well update on the babies... After six long days in the hospital.. Parker has finally discharged... His O2 levels are maintaining over 92% on room air and they are stable while sleeping.. He is going to require breathing treatment every 6 hours but he is doing great...

Audrey on the other hand... it took her longer to get sick and therefore she is going to be stubborn and take longer to get well... She is still requiring oxygen, especially while she is sleeping... I think she is liking all the attention that she is getting from the nurses.

So far the hospitalization has been great.. We have had wonderful nursing staff.. (well except for maybe one nurse... she is a little impatient). I have definitely had to be my babies advocate... I have been persistant in getting them proper care. We specifically have fallen in love with a few particular nurses... Susan was our favorite nurse this weekend... She loved the babies.. She flew all the way back from Minnesota this weekend just to work and turned around and flew back on Monday morning... Bethany was a great pick for our weekend day nurse. She had compassion like you couldn't believe.. She shared with us that she has been the mother of a chronically ill child... She was wonderful... Jayda... Lets just say that good genes must run in her family. She was wondeful (she is sisters with Michelle the Lacatation consulatant that I loved when I had the babies in November). Jayda helped bathe the babes one night and would come in just to love on them... She even got sprayed in the face by my breast milk (long story)... and Martha... I have never met a nurse that loved her job so much. Thank you so much Lutheran Inpatient Peds nurses for taking such good care of my munchkins...

Now that Parker has been discharged, he will stay up at the hospital with me... I will have to get up now in the middle of the night to do his breathing treatments... No more Respiratory therapists for Parker... Come on Audi. it is your turn to get out of here...